Information sharing in the NHS is subject to rigorous regulation and governance to ensure your full identifiable and personal medical data is kept confidential and only ever seen by carefully vetted doctors, nurses and administrative staff responsible for overseeing your care.
With the development of information technology the NHS will increasingly be sharing key information from your GP medical notes with Out of Hours GP Services, Hospital A&E Units, Community Hospitals, Community Nurses all of whom may at various times in your life be looking after you. Sharing information can improve both the quality and safety of care you receive and in some cases can be vital in making life-saving decisions about your treatment.
There are currently two different elements of "sharing NHS patient information":
- SCR = The NHS Summary Care Record
- Local Shared Care Record
SCR = NHS Summary Care Record
The NHS Summary Care Record was introduced many years ago to help deliver better and safer care; it contains basic information about:
- Any allergies you may have
- Unexpected reactions to medication
- Any prescriptions you have recently received
The intention of the SCR is to help clinicians in Hospital A&E Departments, Paramedics and GP 'Out of Hours' health services to give you safe, timely and effective treatment. Clinicians are only allowed to access your SCR record if they are authorised to do so and, even then, only if you give your express permission. You will be asked if healthcare staff can look at your Summary Care Records every time they need to, unless it is an emergency, for instance if you are unconscious. You can refuse if you think access is unnecessary.
Over time, health professionals treating you may add details about any health problems and summaries of your care. Every time further information is added to your record, you will be asked if you agree (explicit consent).
Patients under 16 years have an NHS Summary Care Record created for them so if you are the patient or guardian of a child then please either make this information available to them or decide and act on their behalf.
Please complete the following consent form and return to the surgery to give the surgery your consent to share your SCR with additional information to other NHS Health care providers.
Summary Care Record with additional information consent form
For further information visit the NHS Care records website or the HSCIC Website
Local Shared Care Record
Many people think that their GP health record is available to all healthcare professionals involved in their care, but this is not always the case.
At the moment, each professional a patient sees keeps a separate record. This can mean some important information not being communicated between health services as well as it could be. Having a single electronic record with all health information in one place means that care providers can give patients the most safe and efficient care possible. Health information recorded at the Queens Medical Centre can be shared digitally with other health and care organisations where patients are being treated. Queens Medical Centre asks patients if they wish to share their information on an individual patient basis with regard to record sharing.
Sharing IN determines whether or not our GP Practice can view information in your record that has been entered by other NHS services who are providing care for you or who may provide care for you in the future (that you have consented to share out).
Sharing OUT controls whether information recorded at our GP Practice can be shared with other NHS health Care providers.
Making your local health record work better for you
Shared Records FAQ
Further information can be found at NHS Devon CCG.
Your Data Matters to the NHS
The NHS wants to make sure you and your family have the best care now and in the future. Your health and adult social care information supports your individual care.
Unless you have chosen to opt out, your confidential patient information can be used for research and planning. You are able to make or change your decision at any time. Your confidential patient information provides numerous benefits. It is used in research to find cures and better treatments for diseases like diabetes and cancer.
Most of the time, we use anonymised data for research and planning. So your confidential patient information isn't always needed. If you do opt out, data that does not identify you may still be used.
Confidential patient information can also be used to plan health and care services more effectively. The NHS and local authorities can plan where they need to provide further care services more efficiently.
With you data, we are better able to develop and improve health and care services for the future. This helps to improve health and social care for you and your family.
The NHS collects health and care data from all NHS organisations, trust and local authorities. Data is also collected from private organisations, such as private hospitals providing NHS funded care. Research bodies and organisations can request access to this data. Further information can be found here.
There are very strict rules in how your data can and cannot be used, and you have clear data rights. Access to confidential patient information will not be given for marketing purposes or insurance purposes - unless you specifically request this.
Protection of your confidential patient information is taken very seriously and is looked after in accordance with good practice and the law.
Every organisation that provides health and care services will take every step to:
- ensure data remains secure
- use anonymised data whenever possible
- use confidential patient information for marketing or insurance purposes (unless you specifically request this)
- make it clear why and how data is being used
- respect your decision if you decide to opt out
- only use information about you where allowed by law
All NHS organisations must provide information on the type of data they collect and how it is used. Data release registers are published by NHS Digital and Public Health England, showing records of the data they have shared with other organisations.
Manage your choice
Online: Use this service to request that your confidential patient information is not used beyond your own individual care. https://www.nhs.uk/your-nhs-data-matters/
Telephone: 0300 303 5678 Open: 9am to 5pm Monday to Friday (excluding bank holidays). - You may contact the NHS Digital Contact Centre to verify your identity and discuss your data sharing choices.
Parents or legal guardians may also set and manage a choice on behalf of their child under the age of 13 years.
You can set and manage a choice on behalf of another individual, who is unable to manage their choice independently. For example, if you have power of attorney.
If you decide to opt out, this will be respected and applied by NHS digital and Public Health England. These organisations collect, process and release health and adult social care data on a national basis. Your decision will also be respected and applied by all other organisations that are responsible for health and care information by March 2020.
An opt-out will only apply to the health and care system in England. This does not apply to your health data where you have accessed health or care services outside of England, such as in Scotland and Wales.
If you choose to opt out, your data may still be used during some specific situations. For example, during an epidemic where there might be a risk to other people's health.
National Data Opt-out Programme
For more information on where opt outs do not apply click here.